mPancreatic Cancer RoadMap – Say YES to HOPE

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Home
About Us
Advanced Cancer
- Cancer Type
  - Bladder
  - Brain
  - Breast
  - Cervical
  - Colorectal
  - Esophageal
  - GIST
  - Liver
  - Lung
  - Melanoma
  - Neuroendocrine
  - Ovarian
  - Pancreatic
  - Prostate
  - Renal Cell
- If Cancer Spreads
Support

Metastatic Pancreatic Cancer Roadmap

Understanding your diagnosis, tumor biology, treatment history, and clinical trial interest can help guide conversations with your care team and help you explore available options.

1. Diagnosis & Cancer History

What type of pancreatic cancer were you diagnosed with? Where in the pancreas did the cancer begin? When was metastatic or advanced disease diagnosed? Was surgery performed to remove the tumor?

Whipple procedure Distal pancreatectomy Total pancreatectomy Other pancreatic surgery No surgery performed Not sure

Were lymph nodes involved?

2. Tumor Biology & Biomarkers

Has genetic or molecular testing been performed?

Germline mutations

BRCA1 BRCA2 PALB2 ATM CHEK2 CDKN2A STK11 TP53 Other germline mutation Not sure

Tumor (somatic) mutations

KRAS mutation BRAF mutation NTRK gene fusion RET fusion ALK fusion ROS1 fusion HER2 amplification FGFR alteration MSI-High / mismatch repair deficiency Tumor mutational burden (TMB) Other mutation identified No mutations identified Not sure

Was germline genetic testing performed? Was tumor genomic testing performed? Tumor markers that may be monitored

CA19-9 CEA Other tumor marker Not sure

3. Where Has the Cancer Spread?

Select all areas identified.

Liver Peritoneum / abdominal lining Lymph nodes Lung Bone Brain Adrenal glands Skin Other organs Not sure

Liver Metastases

How many tumors are present in the liver?

Peritoneal Disease

Has cancer spread throughout the abdominal lining? Have doctors discussed fluid buildup in the abdomen (ascites)?

Lung Metastases

How many tumors are present in the lungs?

Bone Metastases

How many areas of bone are affected? Treatments discussed?

Radiation therapy Bone-strengthening medications Surgery to stabilize bone Medication treatment only Not sure

Brain Metastases

Has cancer spread to the brain? How many brain tumors are present? Treatments discussed?

Surgery Stereotactic radiosurgery Whole brain radiation Medication treatment only Not sure

4. Treatment Goals & Planning

What has your care team described as the primary goal of treatment? How will doctors evaluate whether treatment is working?

CT scans MRI scans PET scans CA19-9 blood test Symptom improvement Not sure

How often are scans planned?

5. Prior Systemic Treatments

Chemotherapy

FOLFIRINOX Modified FOLFIRINOX Gemcitabine Gemcitabine + Nab-Paclitaxel Gemcitabine + Cisplatin Liposomal irinotecan Capecitabine 5-FU Other chemotherapy Not sure

Targeted Therapy

PARP inhibitor (Olaparib) TRK inhibitor HER2-targeted therapy Other targeted therapy Not sure

Immunotherapy

Pembrolizumab Other immunotherapy Not sure

Clinical trials Current treatment

Chemotherapy Targeted therapy Immunotherapy Clinical trial Not currently receiving treatment Not sure

6. Prior Local Treatments

Surgery

Whipple procedure Distal pancreatectomy Surgery to remove metastatic tumors No surgery

Radiation

Radiation to primary tumor Radiation to metastatic tumors Focused radiation therapy (SBRT) Other radiation therapy None

Ablation

Radiofrequency ablation Microwave ablation Cryoablation Not sure

7. Your Health, Priorities & Questions

How are you feeling in daily life? Symptoms you would like help managing

Abdominal pain Back pain Fatigue Loss of appetite Weight loss Nausea Digestive problems Other symptoms None currently

What matters most to you right now? Notes for your care team

Clinical Trials

Are you interested in clinical trial options?

ZIP code How far are you willing to travel?

About You (Optional)

You can skip this section. It helps us understand who is using this tool in aggregate.

Age Range Race / Ethnicity

My Questions for My Care Team

Cancer Roadmap

Physician Discussion Summary

For Informational Purposes Only – Not Medical Advice

The information provided by this tool is intended for educational and informational purposes only. This tool does not provide medical advice, professional diagnosis, opinion, or treatment to you or any other individual.

Consult Your Physician: This information is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.
No Doctor-Patient Relationship: Your use of this tool does not create a doctor-patient relationship between you and “Say YES to Hope” or any associated clinical partners.
Emergency Situations: Never disregard professional medical advice or delay in seeking it because of something you have read in this roadmap. If you think you may have a medical emergency, call your doctor or emergency services immediately.
Accuracy of Information: We strive to use the latest resources for our information but medical knowledge is constantly evolving. “Say YES to Hope” does not guarantee the accuracy, completeness, or timeliness of the information generated.

The information presented in this Website is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you get from this Website.

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